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Gilbert, AZ
Run For Broxton was created to celebrate the life and memory of Broxton Taylor. While taken from us all to soon we remember him and continue to fight to find a cure.
Batten Disease is a rare genetic disorder in which affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten Disease become blind, bedridden, and unable to communicate, and it is presently always fatal. The Infantile form of Batten Disease begins between the ages of 6 months and 2 years and progresses rapidly. Affected children fail to thrive, have abnormally small heads, and typically have short, sharp muscle contractions. Initial signs of this disorder include delayed psychomotor development with progressive deterioration, other motor disorders, or seizures, The infantile form has the most rapid progression and children live into their mid-childhood years. (**this paragraph taken from the Batten Disease Support and Research Foundation web site, http://www.bdsra.org/)
